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International Rare Disease Day observed on 28 February

On this day, hundreds of patient organisations from more than 80 countries and regions worldwide carried-on awareness-raising activities around the slogan Day-by-day, hand-in-hand.

Feb 28, 2015 14:46 IST
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28 February: International Rare Disease Day
Eighth International Rare Disease Day was observed globally on 28 February 2015. The Rare Disease Day annually takes place on the last day of February.

To mark the day, hundreds of patient organisations from more than 80 countries and regions worldwide carried-on awareness-raising activities around the slogan Day-by-day, hand-in-hand.

The day is observed to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.

The Rare Disease day is coordinated by European Organization for Rare Diseases (EURORDIS) and the main objective of the day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

About Rare Disease Day

The Rare Disease Day was launched by EURODIS and Council National Alliances in 2008. Since its launch, the day has contributed to the advancement of national plans and policies for rare diseases in a number of countries.

Although the campaign started as a European event but became a world phenomenon after the US joined it in 2009. Further in 2014, number of participant nations went up to 84 countries.

 

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