17 April 2013: World Hemophilia Day
World Hemophilia Day was observed on 17 April 2013 across the world. The day is observed to advocate for the global efforts to ensure appropriate care and treatment of diseases, which are the oldest known genetic bleeding disorders caused by Genetic Deficiency.
50 Years of Advancing Treatment for All has been decided as the theme for the year 2013. The World Federation of Hemophilia (WFH) and the global community have worked together, for over a period of past 50 years, to improve care and treatment for inherited bleeding disorders.
17 April is observed as the World Hemophilia Day every year across the world. Hemophilia generally is a blood disorder that effects a huge population across the world. The disease is generally transmitted to the daughter from his father at the time of birth, who further becomes the carrier of hemophilia cells of the defected gene to her children.
This is a non-curable disease but can be handled, if treated finely. World Hemophilia Day aims to increase awareness of this disease and other bleeding disorders as well as where we have been, where we want to go, and that together, we can close the gap in care. Hemophilia B is the second most common kind of bleeding disorder, also termed as factor IX deficiency.
Reality of the Hemophilia
75 percent of the people suffering from the disease across the world receive inadequate treatment or no treatment at all. The percentage of the people suffering from the disorder is higher than the Von Willebrand disorder and rare factor deficiencies.