World Hemophilia Day is observed every year on 17 April worldwide and was started by the World Federation of Hemophilia (WHF).
This Day aimed at raising awareness about Hemophilia and other inherited bleeding disorders. It is an effort for better diagnosis and access to care those people who remain without treatment.
It also gives an opportunity to discuss about this disease with friends, family, colleagues, etc. and to support the patients suffering from Hemophilia disease. It raises funds for the patients who cannot afford the treatment cost.
Theme of 28th World Hemophilia Day 2018
The theme of 28th World Hemophilia Day 2018 is Sharing Knowledge makes us stronger. To increase awareness about this bleeding disorder and to provide first-hand knowledge to access care and treatment.
History of World Hemophilia Day
The World Hemophilia Day was started by the World Federation of Hemophilia in 1989 and 17 April, was chosen to celebrate it in honour of the founder of World Federation Hemophilia Frank Schnabel's birthday. Actually, Hemophilia was discovered in the 10th century, when people started to take serious interest, especially in males, who after minor injuries due to bleeding caused death. That time this disease was known as Abulcasis. But, due to limited technology it was not cured. Especially, that time this disease was common in European royal families and was treated with aspirin which further thinned the blood and condition becomes worse. Then, Dr. John Conrad Otto of Philadelphia in 1803 began to study people called "bleeders" and said that it is a hereditary illness which passes on to males by their mothers. In 1937, hemophilia genetic disorder was divided into two types: A and B. But no proper treatment was invented till that time.
Then, on 17 April was chosen to raise awareness among people about Hemophilia disease on the occasion of the founder of WFH birthday's. To collect funds for the treatment of this disease for those people who can't afford it.
World Health Day 2018
How World Hemophilia Day is celebrated
On 17th April every year worldwide World Hemophilia Day is celebrated to raise understanding and awareness of this genetic disorder and other linked bleeding disorders. Many people organise awareness-raising campaigns and perform several activities to inform general public about the Hemophilia disease. Even the employees of various health organisations participate in the events. The main issue with this disease is that people suffering from Hemophilia won't get proper treatment or sometime no treatment. Do you know that almost 1 out of 10000 has bleeding disorder and requires proper treatment?
In India on this day various events are organised by groups of people in several states. Indian Hemophilia Foundation situated in New Delhi in association with the Ministry of Health and Family Welfare also celebrates this day by providing medical facilities to the needy and increases the awareness about this disease. Program is also conducted to take and update decision at the national and the state level about the sufferings and disorder of the Hemophilic community.
About Hemophilia disease
- Hemophilia is an inherited blood disorder disease in which blood does not clot properly.
- It is caused due to defects in the blood vessels, the coagulation mechanism, or the blood platelets and by a deficiency in a gene which resolves on how the human body will make factors VII, IX or XI.
- The genes are found on the X chromosome, which makes Hemophilia a disease of X-linked recessive.
- Person suffering from this disease bleed spontaneously. After injury or surgery a person may bleed for longer than a healthy person.
- The blood coagulation mechanism is a process which transforms the blood from a liquid into a solid, and involves several different clotting factors. In this mechanism fibrin is generated and together combine with the platelet to stop the bleeding.
- If coagulation factors are missing or deficient in the body then blood does not clot properly and bleeding continues.
- Hemophilia has three forms namely Hemophilia A, B and C. Out of these, Hemophilia A is the most common.
- Hemophilia A patient is treated by prescribing a hormone desmopressin.
- Hemophilia B patient is treated by infusing the patient’s blood with the clotting factors of a donor.
- Hemophilia C patient is treated by plasma infusion which cease down profuse bleeding.
Therefore, World Hemophilia Day focuses on educating hemophilic patients and the general public about bleeding disorders. It also emphasises for the proper treatment and care to the Hemophilic patients.